Our story

Built for the Duchenne community.

DMD Pathways was founded to give every Duchenne family a clear path forward — and to help research reach the families who need it, faster.

Our mission

Duchenne muscular dystrophy is a progressive, life-shortening rare disease. Time matters. Yet families are too often left navigating fragmented information across hospitals, registries, and advocacy groups — while life-changing trials remain under-enrolled.

DMD Pathways unifies the Duchenne ecosystem on one platform. We connect families to every available treatment and trial, while giving researchers and pharma partners the visibility and engagement they need to deliver therapies sooner.

Compassion

Every decision starts with families.

Independence

We work with pharma — but we work for patients.

Transparency

Verified data. Clear sourcing. No hidden agendas.

Our vision

Every family with Duchenne deserves access to every treatment, everywhere — and every trial deserves the patients who need it most.

Work with us

People

The people behind DMD Pathways.

DMD Pathways was built by people who know this journey personally — parents who turned lived experience into a platform for families everywhere.

Founder

Jamie Tierney

Jamie is the father of a young boy living with Duchenne muscular dystrophy. He wasn't a clinician or a researcher — just a regular dad trying to find answers for his family after his son's diagnosis. He quickly experienced firsthand how scattered and inaccessible information about treatments and trials can be, and realized that if his family needed this kind of help, so did countless others. That realization became DMD Pathways: a single, clear place where families can see what treatments, trials, and pathways exist globally — without pressure, opinion, or instruction.

Co-Builder

Susan Metheny

Susan is a rare disease advocate and clinical research professional who helped build DMD Pathways to give families a clearer way to navigate treatments, trials, and support resources. Her perspective is shaped by both sides of the journey — years of professional experience in clinical research, and her family's own path through Duchenne muscular dystrophy with her son, Jake. From traveling long distances for clinical trials to running into fragmented information and access barriers, Susan has lived the challenges families face. That experience now drives her work to bridge the gap between patients, research, and industry — building systems that make innovation more accessible, informed, and family-centered.