For support organizations
Amplify your reach. Strengthen your community.
Partner with DMD Pathways to connect more families with your programs, events, and resources — at exactly the moment they need them.
Greater Visibility
Be discovered by families at diagnosis — and at every milestone after.
Coordinated Care
Plug into a unified network of clinicians, researchers, and orgs.
Community Insights
Understand emerging needs across the Duchenne community.
What we provide
A full operating system for family support
DMD Pathways gives patient advocacy groups, foundations, and community-based organizations the infrastructure to deliver — and measure — high-impact support at every stage of the Duchenne journey.
Warm Referral Queue
Receive consented, pre-qualified family referrals matched to your eligibility criteria, geography, and disease stage focus.
Family Profiles & History
See a unified profile per family — diagnosis stage, current needs, prior outreach, and notes shared across your team.
Needs & Resource Matching
Surface families whose stated needs (equipment, travel, transition, mental health) align with the programs you actually offer.
Events & Program Promotion
Distribute events, camps, webinars, and grants to the right families at the right time — no list scraping or generic blasts.
Local Resource Directory
Publish your services into a curated directory families and clinicians actually browse during diagnosis and milestones.
Care Coordination Handoffs
Coordinate with clinics, schools, and peer orgs through structured handoffs instead of one-off emails.
Impact Dashboards
Track families reached, responses, resources assigned, and needs resolved — by program, region, and timeframe.
Grant-Ready Reporting
Export funder-ready impact summaries with outcomes, demographics, and stories — generated, not assembled.
Consent & Privacy Controls
HIPAA-aligned consent, role-based access, and family-controlled sharing — built in, not bolted on.
How partnership works
From onboarding to ongoing impact
01
Onboard
We map your programs, eligibility, and capacity into your org profile.
02
Match
Consented families are routed to you based on need, geography, and stage.
03
Serve
Your team engages through the portal — track outreach and resources delivered.
04
Report
Generate grant-ready impact summaries and share back with the network.
Built for
Every kind of support organization
Patient advocacy groups
National & disease-specific foundations.
Wish & camp programs
Experience-based and respite providers.
Funding & grant orgs
Equipment, travel, and family assistance funds.
Regional & peer networks
Local chapters and parent-led communities.
Support Organization Portal
Data that powers smarter support —
and stronger outcomes.
The DMD Pathways Support Organization Portal provides appropriately consented, de-identified family insights to help support organizations understand community needs, measure reach, and engage more effectively.
Community Reach
See which resources connect with families and where more support is needed.
Engagement Trends
Understand what's working across stages of the journey.
Geographic Insights
Identify regional patterns to guide programs and events.
Impact Measurement
Track utilization and engagement to inform future priorities.
Collaborative Growth
Shape stronger, more targeted community support together.
Built for collaboration
Designed to help support organizations extend their mission with data, not guesswork.
Privacy comes first
Developed with consent, data minimization, and de-identification to protect families.
Insights for action
Use real-world community insights to plan, prioritize, and expand the support that families value most.
We're stronger together.
DMD Pathways is built in partnership with the support organizations that have shaped the Duchenne community for decades. We don't replace you — we amplify you.
Become a partner