Community Interest List

Tell us about yourself and what would make this community genuinely useful. Only the first few questions are required — everything else is optional.

About you

First name *

Last name *

Email *

Preferred way to be contacted *

Country *

State, province, or region

Age range *

Do you have Duchenne? *

Which best describes your stage of adult life?

Your life, interests, and goals

Your interests and hobbies

What does a typical day look like for you?

What goals or priorities matter most right now?

What challenges would you most like help with?

Shaping the community

What topics would you want covered?

What formats would you find most useful?

Discussion groupsLive video meetupsText or message-based chatOne-to-one peer connectionResource and how-to libraryEvents and guest speakers

How would you like to take part?

Read and follow alongJoin conversationsShare my own experienceHelp co-design the communityHelp moderate or host

What would make this community feel respectful and safe?

What would you not want to see?

Anything else you would like us to know?

Yes, please contact me with updates about the adult Duchenne community as it takes shape.

DMD Pathways

A rare disease navigation platform for Duchenne muscular dystrophy. Connecting families, researchers, and support organizations — every treatment, everywhere.

Every Treatment. Everywhere.

Platform

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For Pharma and Research
For Support Organizations

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Medical Disclaimer: DMD Pathways is an informational and navigation platform. We do not provide medical advice, diagnosis, or treatment. The information shared on this site — including details about clinical trials, therapies, and support organizations — is for educational purposes only and is not a substitute for professional medical guidance. Always consult a qualified healthcare provider regarding any medical condition or treatment decisions.

Built with care for the Duchenne community.