Just Diagnosed
Your First Steps
Action Plan
A diagnosis changes everything.
You don't have to do everything today.
We'll walk with you one step at a time.
You do not need to...
- Learn everything today.
- Make every decision this week.
- Carry this alone.
Your Progress
0 of 5 steps completed
Next up: Understand the Diagnosis
There is no deadline. Take one step at a time and return whenever your family is ready.
No steps marked complete yet.Stay Organized
Build Your Child's
Care Binder
Every family organizes information differently. Some use a three-ring binder, while others use folders, tablets, or digital tools. Choose the system that works best for your family.
The DMD Pathways Care Binder helps you organize medical information, appointments, medications, school records, caregiver instructions, insurance documents, resources, and more.
Download the complete binder, choose a full section, or print only the individual pages your family needs.
The Care Binder is a family organization tool. It does not replace official medical records from your child's healthcare providers.
Complete Package
Download the Complete Care Binder
All front matter, eight sections, and approved forms in one printable PDF.
Three ways to use the binder
- Download the complete package.
- Download one complete section.
- Open a section to print individual pages.
Download by Section
Choose a Section
Open a section to download the complete section or choose individual pages.
Print only what you need. Add or replace pages as your child's journey evolves.
Three things families wish someone had told us
- “You do not need to figure everything out today.”
- “There is still room for joy.”
- “Hope and reality can exist together.”
Your First Steps Roadmap
Follow the path. Take what you need. Skip what can wait.
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