Swimming
Buoyancy reduces gravity β often one of the most enjoyable and accessible activities.
Walking & Active
Childhood should be filled with more than appointments. Sports, hobbies, camps, music, outdoor adventures, clubs, and friendships all help children grow in ways that medicine alone never can.
Participation may change over time. The opportunity to belong should not.
Why Recreation Matters
Sports, hobbies, and camps help children living with Duchenne grow socially, emotionally, and physically. The ride home from practice, the shared joke at lunch, the picture on the team wall β these are the moments that make childhood whole.
Sports & Physical Activities
These are activities many families have enjoyed. None is right for every child β and that's okay. The goal is finding the ones that bring joy and fit each child's needs.
Buoyancy reduces gravity β often one of the most enjoyable and accessible activities.
Trikes, recumbents, and tandems keep children riding alongside family and friends.
Miracle League and challenger divisions welcome players of every ability.
TOPSoccer and inclusive leagues allow modified play where appropriate.
Shooting practice, recreational play, or wheelchair basketball as needs evolve.
Ramps, bumpers, and lightweight balls make every frame possible.
Adaptive carts and short courses turn the green into family time.
Quiet, low-impact, and full of patience β perfect for shared mornings.
Paved and boardwalk trails open the outdoors to children of every mobility level.
Gentle stretching, breathing, and balance β adaptable to any body.
Music, expression, and movement at whatever pace feels good.
With appropriate modifications, builds focus, confidence, and discipline.
Every child living with Duchenne is different. Before beginning a new sport or recreational activity, families should discuss participation with their neuromuscular care team or physical therapist. Recommendations may vary based on age, strength, heart health, bone health, respiratory function, and each child's individual needs. This page is intended to inspire ideas β not replace medical guidance.
Recreation Beyond Sports
Meaningful participation is not limited to athletics. Friendships, creativity, confidence, and belonging are equally important parts of childhood.
Lessons, choirs, and ensembles open lifelong creative outlets.
Painting, drawing, and sculpture build expression and patience.
Stage and improv welcome every voice β on stage or backstage.
FIRST LEGO League and maker clubs nurture curiosity and teamwork.
Inclusive troops welcome members of every ability worldwide.
A camera turns any outing into a creative adventure.
Online communities and adaptive controllers build friendships across distance.
Birdwatching, geocaching, and gardening connect children to the world outside.
Chess, debate, science, language β belonging often starts in the classroom.
Helping others builds purpose and confidence at any age.
Faith communities, libraries, and youth groups often welcome new members warmly.
Camps Around the World
Many families discover camp is the one week each year their child is surrounded by other kids who simply understand. This list is a starting point β your local muscular dystrophy organization can point you to more.
United States
Free week of camp for children with neuromuscular disease, with full medical support and 1:1 counselors.
Locations across the U.S.
Visit websiteUnited States
Free camp for kids and adults with neuromuscular conditions; East, West, and Midwest sessions.
Visit websiteUnited States & Canada
Inclusive day and overnight camps for children with disabilities across many states and provinces.
Visit websiteCanada
Provincial summer camps offering accessible recreation and community.
Visit websiteUnited States
SeriousFun network camp in Florida for children with serious illnesses, free of charge.
Visit websiteUnited States
Free SeriousFun camp in California for children with chronic and life-threatening conditions.
Visit websiteUnited Kingdom
SeriousFun network camp offering free residential and family camps for seriously ill children.
Visit websiteUnited Kingdom
Family weekends, youth events, and the Trailblazers network for young adults.
Visit websiteUnited Kingdom
Accessible outdoor adventure breaks for disabled children and families.
Visit websiteIreland
Free SeriousFun camp for children with serious illnesses and their families.
Visit websiteFrance
Free SeriousFun camp for children with serious illnesses.
Visit websiteItaly
Free SeriousFun therapy-recreation camp for children with chronic illnesses.
Visit websiteHungary
SeriousFun camp offering free therapeutic recreation for seriously ill children across Central Europe.
Visit websiteFrance
Family weekends and respite stays organized by the French neuromuscular association.
Visit websiteAustralia
Family and youth camps tailored to neuromuscular conditions.
Visit websiteNew Zealand
Family days, retreats, and youth recreation programs.
Visit websiteIndia
Periodic family meets and recreation events for children with neuromuscular disease.
Visit websiteJapan
Family gatherings and youth programs through regional chapters.
Visit websiteVarious
Inclusive recreation experiences offered through regional partners.
Visit websiteArgentina
Recreation days, family encounters, and youth meetups.
Visit websiteBrazil
Family gatherings and educational events across Brazil.
Visit websiteRegional
Affiliated free camps for children with serious illnesses.
Visit websiteSouth Africa
Family camps, youth weekends, and community recreation days.
Visit websiteSouthern Africa
Accessible safari and adventure operator that welcomes children and families with disabilities.
Visit websiteFinding Local Opportunities
Rather than listing every recreation program worldwide, here are the places families most often find what works in their own community.
Often know the local adaptive programs and trusted instructors.
PTs frequently connect families to community recreation that fits their goals.
City and county programs often include adaptive sports and inclusive camps.
Groups like Move United, Disability Sport, and local chapters host year-round leagues.
MDA, MDUK, MDC, MDA Australia, and others maintain camp and program directories.
Easterseals, Variety, and similar groups offer recreation across many countries.
Adaptive PE teachers and inclusion specialists know what's available locally.
Other families are often the single best source of community recommendations.
Small community organizations frequently run the most personal, welcoming programs.
Connect with other parents in your community whenever you can. They are often the very best source of local recommendations β and the friendships that follow are a gift in themselves.
Questions to Ask Your Care Team
What We Wish
Someone Had Told Us
Honest advice and lessons learned from Duchenne families who've been there.
Participation Matters More Than Perfection
When our child was younger, we sometimes found ourselves asking whether they should still sign up. Should they try the sport? Should they go to camp? Would they be able to keep up?
Looking back, we wish someone had encouraged us to ask a different question.
Not: "Can my child do everything exactly like everyone else?"
But: "How can my child still be part of it?"
Sometimes the answer was changing the rules. Sometimes it meant taking more breaks. Sometimes it meant trying a different activity. Sometimes it meant discovering a hobby we never would have considered otherwise.
What mattered most wasn't winning. It wasn't keeping score. It wasn't doing everything exactly the same way.
It was the friendships. The confidence. The laughter. The campfires. The team photos. The inside jokes. The feeling of belonging.
Childhood should never become only doctor's appointments. It should still include teammates. Counselors. Art projects. Fishing trips. Music lessons. Camp songs. School clubs. New adventures. And memories that have nothing to do with Duchenne.
Because those moments help shape who our children become.
The goal isn't to do every activity exactly the same way. The goal is to help every child find places where they can participate, belong, and create lifelong memories.
Related resources
Preserving joy and participation during the walking years.
OpenFreedom to ride alongside family and friends.
OpenPractical resources for exploring the world together.
OpenWhere gravity lets go and movement feels easier.
OpenProtecting strength, energy, and participation.
OpenEmotional well-being, confidence, siblings, relationships, and finding community.
Open